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BESE PLACES MEETING MATERIALS ONLINE
BATON ROUGE, La. - In an effort to provide greater access to the public the Board of Elementary and Secondary education will now be posting materials for its meetings online. This latest initiative works hand in hand with the goals of BESE and the Department to create greater transparency for all stakeholders.
"I think this is a great step forward for BESE and for the people we serve," said Board President Linda Johnson. "At a time in our state's history when the interest and participation surrounding education has never been greater or more important, we have to do our part to make the process of getting that information as simple as possible. Now even those who are unable to attend our meetings are able to know what's happening and how it could affect them."
The BESE meeting packets are now available to the public via the BESE portion of the Department of Education website, www.louisianaschools.net. Constituents will find the link on the BESE Home page on the side navigation links. The packets will be posted on Fridays before the regularly scheduled Board meeting (or as they become available) and will remain linked to the page until the Friday of the following week. This link will remain as a permanent fixture on the BESE home page, and will make it easier for the public to receive information about the BESE meetings in the future.
State Superintendent of Education Paul Pastorek added, "This is where the technology is taking us. People are looking for more information, more quickly. I commend the board for taking this step and the Department will do whatever it can to produce more avenues to access for the public."
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Articles Regarding Educational Issues and Disability Related Concerns
NCLB and IDEA: What Parents of Students with Disabilities Need to Know and Do
(click on title for link to article)
Published by National Center on Educational Outcomes. In collaboration with Council of Chief State School Officers (CCSSO) and National Association of State Directors of Special Education (NASDSE).
This interactive website on IDEA 2004 is maintained by the US Department of Education, the Office of Special Education Programs, and has great information for parents and professionals on different topics covered by IDEA and other laws such as No Child Left Behind.
Click on this link - http://idea.ed.gov/explore/home
Individuals with Special Needs
Preparing and Planning
If you or someone close to you has a disability or a special need, you may have to take additional steps to protect yourself and your family in an emergency.
Disability/Special Need
|
Additional Steps
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| Visually impaired |
May be extremely reluctant to leave familiar surroundings when the request for evacuation comes from a stranger. A guide dog could become confused or disoriented in a disaster. People who are blind or partially sighted may have to depend on others to lead them, as well as their dog, to safety during a disaster. |
| Hearing impaired |
May need to make special arrangements to receive warnings. |
| Mobility impaired |
May need special assistance to get to a shelter. |
| Single working parent |
May need help to plan for disasters and emergencies. |
| Non-English speaking persons |
May need assistance planning for and responding to emergencies. Community and cultural groups may be able to help keep people informed. |
| People without vehicles |
May need to make arrangements for transportation. |
| People with special dietary needs |
Should take special precautions to have an adequate emergency food supply. |
| People with medical conditions |
Should know the location and availability of more than one facility if dependent on a dialysis machine or other life-sustaining equipment or treatment. |
| People with mental retardation |
May need help responding to emergencies and getting to a shelter. |
| People with dementia |
Should be registered in the Alzheimer’s Association Safe Return Program |
If you have special needs: Find out about special assistance that may be available in your community. Register with the office of emergency services or the local fire department for assistance so needed help can be provided.
Check for hazards in the home During and right after a disaster, ordinary items in the home can cause injury or damage. Anything that can move, fall, break or cause fire is a home hazard. Check for items such as bookcases, hanging pictures, or overhead lights that could fall in an earthquake or a flood and block an escape path.
Be ready to evacuate Have a plan for getting out of your home or building (ask your family or friends for assistance, if necessary). Also, plan two evacuation routes because some roads may be closed or blocked in a disaster.
- Create a network of neighbors, relatives, friends, and coworkers to aid you in an emergency. Discuss your needs and make sure everyone knows how to operate necessary equipment.
- Discuss your needs with your employer.
- If you are mobility impaired and live or work in a high-rise building, have an escape chair.
- If you live in an apartment building, ask the management to mark accessible exits clearly and to make arrangements to help you leave the building.
- Keep specialized items ready, including extra wheelchair batteries, oxygen, catheters, medication, prescriptions, food for service animals, and any other items you might need.
- Be sure to make provisions for medications that require refrigeration.
- Keep a list of the type and model numbers of the medical devices you require.
- Wear medical alert tags or bracelets to identify your disability.
- Know the location and availability of more than one facility if you are dependent on a dialysis machine or other life-sustaining equipment or treatment.
Additional Resources
Preparing for Disaster for People with Disabilities and other Special Needs (FEMA 476) (PDF 732 KB, TXT 26 KB) Available in Spanish (PDF 601KB, TXT 32KB) Provides disaster preparedness information specific to people with disabilities and other special needs, including the elderly.
Emergency preparedness information from DisabilityInfo.gov Find links to additional preparedness information, grants, assistance, government policies, initiatives and much more.
Download Plug-in
Some of the links on this page require a plug-in to view them. Links to the plug-ins are available below.
Adobe Acrobat (PDF)
Last Modified: Thursday, 25-May-2006 11:59:18 EDT
How can SparkTop.org help my child?
How did SparkTop.org come about?
What needs does SparkTop.org address?
For what ages is SparkTop.org most appropriate?
Is this a homework site?
Is there a place for parents on SparkTop.org?
Does SparkTop.org screen kids' submissions before posting them online?
Will I be able to access SparkTop.org with a dial-up connection (56k)?
What equipment do I need to participate on SparkTop.org?
SparkTop.org sounds great! What do I do now?
How do I learn more?
How can SparkTop.org help my child?
SparkTop.org can help 8-12-year-old children with learning difficulties, including learning disabilities (LD) and Attention-Deficit/Hyperactivity Disorder (AD/HD), feel better about themselves — by giving them information about how they learn, helping them recognize their unique strengths, showcasing their creativity, and connecting them to other kids. Since self esteem is crucial to a child's success in school and at home, we hope SparkTop.org will help parents and teachers positively impact the lives of kids who learn differently.
We are happy to announce that SparkTop.org was named a Parent's Choice 2004 and 2005 Recommended Award Winner by Parents' Choice Foundation, the nation's oldest not-for-profit evaluator of books, videos, toys, audios, computer software, television, and magazines. This commendation implies Parents' Choice Foundation's approval and thorough recommendation of SparkTop.org as a resource for children.
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How did SparkTop.org come about?
SparkTop.org was developed by Schwab Learning, a service of the Charles and Helen Schwab Foundation dedicated to helping children who learn differently be successful in learning and life. Since 1988, Schwab Learning has provided support, resources and information free of charge to parents and families through publications and presentations, and now primarily through our website for parents, SchwabLearning.org.
In 2000, Schwab Learning began exploring how to reach kids directly. We conducted formal research and focus groups among kids with LD and AD/HD throughout the country. Our findings, combined with our 14 years of experience in working with parents, helped us identify certain pressing needs of kids who learn differently which are not easily met in their everyday lives. SparkTop.org can help address those needs.
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What needs does SparkTop.org address?
SparkTop.org addresses the following needs of kids with LD through a variety of activities:
Understanding and Information
We've found kids with LD and AD/HD often have a limited understanding of their learning problems, despite how often parents and teachers may explain things to them. Kids have told us that it's not the actual information that causes their anxiety and worry, but rather not understanding what's happening to them and why.
- In SparkTop.org's Studio 24/7, kids can ask any question they may have about their struggles with learning. They can get answers from teenagers, who know what they're going through because they've been there themselves.
- Kids can also go to DBTV and get answers from Dr. Bart, a character based on Bart Pisha (who received his doctorate from the Harvard University Graduate School of Education and is currently Research Director at the Center for Applied Special Technology). Using simple language, Dr. Bart explains how brains work, how kids can maximize their strengths, and how they can manage their challenges with learning.
- The site's BrainPOP on SparkTop® movies provide accurate and accessible information on dyslexia, the brain, AD/HD and more.
Support
Our research has shown that kids who learn differently often feel adults, even their parents and teachers, perceive them as less smart than their peers and siblings. We've found they also feel ashamed of being different from other kids. That's a heavy load to bear, especially when you think you're the only one in the world who feels that way.
- On SparkTop.org's Message Boards, kids can support one another by trading tips and tricks for coping with their learning difficulties, discussing their problems, or just talking about things they enjoy doing.
- In Fame Brains, kids can learn about famous people who struggled in school, yet used their unique talents to do incredible things.
- Kids can connect with one another in Spark 2 Spark. They can see each other's cool "homepages" of their brains; find friends who share their interests; and leave safe, fun messages for one another.
Success
Like all children, kids with LD and AD/HD have an incredible desire to be acknowledged for what they do well. Their everyday accomplishments and amazing talents need to be recognized and celebrated. All too often it's the things they don't do well that get the most attention.
- In the SparkTop.org SparkPoints system, kids earn points and redeem them for fun, free prizes and SparkTop gear. SparkPoints keeps kids engaged in the site and provides a tangible benefit for their participation.
- Kids can celebrate their hobbies and talents in SparkTop.org's Last Bell. They can talk about things they like to do and learn what other kids are doing.
- Since kids who struggle in school need lots of ways to communicate their ideas, they can use the Create Tools to express themselves beyond writing. Kids can paint an idea, record a question, create a music mix, type a poem, or draw a story — and then share it with others!
- Kids can view their creations (plus those of other SparkTop.org members) in the BrainScan Gallery. They can even show family and friends what they've produced by linking their original works to an email from SparkTop.org.
Relief
Kids who learn differently usually spend more time on schoolwork, which takes precious time away from their relaxation and play. They need ways to take a break from their hard work and have fun!
- Kids can take a breather by creating a wacky, unique brain with their personal strengths in BrainSpin — and then use their brain as a game-piece in the HeadZipper Game. Both activities emphasize that no two brains are alike and that great things can come from brains that work differently. They can also play 2 Cubed, a multiplayer trivia game, which lets kids showcase how much they know about popular culture, weird facts, and learning difficulties.
- For kids who struggle in school, stress relief can come in every tool, game, or area of SparkTop.org. By contributing artwork and stories, getting information, playing games, and connecting with others, kids can learn to recognize their unique strengths and talents, embrace their differences, and feel relief in the fact that everyone's brain learns and works differently.
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For what ages is SparkTop.org most appropriate?
SparkTop.org is designed for kids aged 8-12 years with identified learning disabilities (LD) and/or Attention-Deficit/Hyperactivity Disorder (AD/HD). From our experience, we've found that kids at these ages can understand and accept issues related to their particular learning struggle, can articulate their feelings, and can navigate a website.
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Is this a homework site?
SparkTop.org is not a site for homework help or tutoring, although we do offer some general tips on schoolwork and other related topics in Studio 24/7 and DBTV.
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Is there a place for parents on SparkTop.org?
Parents are always welcome on SparkTop.org. We encourage you to review the contents of the site and discuss its various topics with your child. You'll discover that SparkTop.org is a community for kids — one that is safe and accessible enough for kids (who have complete parental permission) to participate in by themselves. To join our parent-centered community, or to learn more about learning disabilities and AD/HD, please visit SchwabLearning.org.
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Does SparkTop.org screen kids' submissions before posting them online?
Absolutely. Before posting any original kid submission on our website, we thoroughly check for inappropriate content.
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Will I be able to access SparkTop.org with a dial-up connection (56k)?
SparkTop.org is a site for 8-12 year-olds who learn differently, many of whom have varied learning and communication styles. As a result, SparkTop.org provides them with unprecedented choices for self-expression — voice, writing, music, art, and photos — and includes a great deal of audio support to help kids better understand written content. Currently, the site will perform very slowly for visitors on a dial-up connection (56k). As we continue improving the site's performance, SparkTop.org is best experienced with a broadband connection — cable, DSL, or T1 and above.
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What equipment do I need to participate on SparkTop.org?
Although optional, we strongly recommend that kids have microphones to use for the interactive Voice Tool on SparkTop.org. New computers often have microphones built into their systems. If using an older computer, you may need to purchase a microphone separately. Inexpensive ones (compatible with both Windows and Macintosh computers) are available at any electronics store for about $10-20 each. If purchased separately, the microphone simply plugs into your computer's CPU (Central Processing Unit) — no installation is necessary.
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SparkTop.org sounds great! What do I do now?
First you need to register your child. Although registration is optional, your child will need to have completed registration in order to fully participate on the site. To register, click here!
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How do I learn more?
If you think your child's teacher might be interested in learning more about SparkTop.org, click here to send information!
To learn more about learning disabilities and AD/HD, check out these resources available on SchwabLearning.org:
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National Center for Learning Disabilities IDEA 2004 Parent Guide - A general online guide for parents and professionals that will help educate anyone wishing to learn more about the federal law governing special education services. Basic advocacy tips are also included.
Many school records available to parents by Sebreana Domingue - Article published in The Daily Advertiser, 3/15/06, page 1A
Dyslexia Resources - Reading checklists to determine if your child has or is at risk for a reading or learning disability
Supporting Students with Asperger's Syndrome - by Dr. Cathy Pratt and Steve Buckman
SchwabLearning - Information for Parents on No Child Left Behind
Understanding Assessment Options for IDEA-eligible Students
Determining Appropriate Assessment Accommodations for Students with Disabilities
The Art of Advocacy - take a quiz to test your knowledge!
Response to Intervention - What IS It?
Accomodations Report from The Council of Chief State School Officers
Anti-bias Lesson Plans and Resources for K-12 Educators
Spelling and Learning Disabilities from LDOnline
Guideposts for Success For those Students Transitioning from High School to Either Employment or Postsecondary Options - For Students with or Without Disabilities
In honor of Sunshine Week this week, The Daily Advertiser each day will bring you a guide to government information available to help you in your life every day. Sunshine Week's purpose is to keep our nation focused on the continuing need for openness in government and access to public records.
Today, we examine what records are available to help you navigate the world around your child's school.
Coming this week
Thursday: Your health and welfare Friday: Your safety, police and courts
1. How do I find out if my child's teacher is certified?
The state Department of Education has set up a Web site to check on teacher certification. Parents can visit www.teach louisiana.net to verify the qualifications of their child's teacher, check the status of certification requests and access up-to-date certification information. Parents also can visit the Teacher Certification Center to find answers to frequently asked questions on the certification process.
Parents also can find out if their child's teacher is National Board Certified, which is a rigorous certification process that helps teachers to become highly qualified under the federal No Child Left Behind Law. To find out if a teacher is National Board Certified or is a candidate for this certification, visit www.nbpts.org.
2. How can I see scores for my child's school?
Parents can visit www.louisianaschools.net and go to the parents section and go to school report cards. Parents can print out or view detailed report cards providing a district's or school's scores. The School Performance Scores and District Performance Scores show how students and school systems are doing in learning. In the accountability section, parents can get definitions and explanations on state testing and scores.
For instance, this year the iLEAP tests will replace The Iowa Tests of Basic Skills, which were used to evaluate student performance in grades three, five, six, seven and ninth from spring 1998 to spring 2005. The term integrated refers to the integration of standards-based tests and norm-referenced tests into one program.
3. How do you find out how much the superintendent in your district earns?
Parents and the general public have the right to go to any school district and request to see a copy of the superintendent's contract. The contract contains information on salary, length of employment and terms of employment. For salary information only, residents can call local school districts and request the information over the phone.
4. How can I find out information on the condition of my child's school building?
Most school districts have a director of planning and facilities who keeps school information related to the maintenance of school sites. Most parents can call a school directly and find out the age of the site. Schools also keep records on repairs and renovations made to facilities.
5. How can I find out if my child's school is safe?
Suspension and expulsion records for parish schools are public record. The school district has to report this information annually to the state Department of Education. The district's department of Census and Attendance handles expulsion and suspension hearings, and keeps records on these and other discipline records. Parents can contact the school directly to find out the number of suspensions and expulsions for the previous year, or visit www.louisianaschools.net to find the information under data and reports. School attendance and drop out rates are also available at the site.
Supporting Students with Asperger's Syndrome
Contributors: Cathy Pratt, Ph.D. and Steve Buckmann
Though challenging behaviors are frequently the primary obstacle in supporting students with Asperger's Syndrome, there are few published studies to direct educators towards the most effective behavioral approaches for these students. What we know to date is largely based on experience and relies heavily on generalizing strategies from the applied behavior analysis arena. However, what appears most evident (given the heterogeneity even among these individuals) is that a primarily categorical approach will be unsuccessful for most, and that effective behavior support will require highly individualized practices which address primary areas of difficulty in social understanding and interactions, pragmatic communication, managing anxiety, preferences for sameness and rules, and ritualistic behaviors.
Recent reauthorization of the Individuals with Disabilities Education Act (IDEA ‘97) will greatly impact how behavioral support is conceptualized and delivered to students with Asperger's Syndrome. IDEA ‘97 requires school districts to conduct functional behavioral assessments when student behavior negatively impacts individual student learning and the school environment. Although functional behavioral assessment has been regarded for many years as best practice for supporting a diverse array of students, its application to school settings in general, and individuals with Asperger's Syndrome in particular, is in its infancy. A general understanding of the characteristics of Asperger's Syndrome in combination with a functional analytic approach to developing positive behavioral supports is needed to achieve best outcomes on behalf of these students.
General Characteristics of Asperger's Syndrome:
Williams (1995) provided a concise description of a broad range of characteristics of individuals with Asperger's Syndrome that may influence a student's school performance, and that provide a beginning road map for instructional and behavioral support issues that must be addressed in the school setting:
- Insistence on sameness: easily overwhelmed by minimal changes in routines, sensitive to environmental stressors, preference for rituals.
- Impairment in social interactions: unable to understand the "rules" of interaction, poor comprehension of jokes and metaphor, pedantic speaking style.
- Restricted range of social competence: preoccupation with singular topics such as train schedules or maps, asking repetitive questions about circumscribed topics, obsessively collecting items.
- Inattention: poor organizational skills, easily distracted, focuses on irrelevant stimuli, difficulty learning in group contexts.
- Poor motor coordination: slow clerical speed, clumsy gait, unsuccessful in games involving motor skills.
- Academic difficulties: restricted problem solving skills, literal thinking, deficiencies with abstract reasoning.
- Emotional vulnerability: low self-esteem, easily overwhelmed, poor coping with stressors, self-critical.
Characteristics of a Functional Analytic Approach to Developing Positive Behavioral Supports:
A functional analytic approach to developing effective positive behavioral supports rests on the use of a process commonly (and most recently) known as functional behavioral assessment. Functional behavioral assessment involves employing a diverse array of strategies (e.g., person-centered planning, team meetings, systematic interviews, direct observations) to formulate hypotheses about why an individual behaves as they do. In order to effectively adopt a functional behavioral assessment approach, several assumptions about behavior must be regarded as valid:
- Behavior is functional - it serves a specific purpose(s). For individuals with Asperger's Syndrome, these functions may be expressed in highly idiosyncratic and often complex verbal ways.
- Behavior has communicative value (if not specific intent). Though it is generally accepted that all behavior has communicative value, it is important to remember that individuals with Asperger's Syndrome generally do not have a behavioral intent to disrupt educational settings, but instead problematic behaviors may arise from other needs, for example, self-protection in stressful situations. Although students with Asperger's Syndrome typically have excellent language skills, their ability to use communication effectively in a social context may be extremely affected. Inappropriate behavior may be the only available communicative response to difficult situations until other options are systematically taught.
- Behavior is context related. All individuals demonstrate some level of variability in behavior across different settings. This is just as true for individuals with Asperger's Syndrome. In fact, understanding how setting specific features impact an individual (either positively or negatively) is one of the chief outcomes of a functional behavioral assessment. This information has particular value for adopting preventive efforts or to set the stage for teaching alternative skills.
- Effective behavioral support is contingent on understanding the student, the context in which he operates, and the reason(s) for behavior.
Though there is often disagreement about the best means to conduct a comprehensive functional behavioral assessment, most researchers and clinicians are in agreement about the key outcomes of such an assessment. They are:
- A clear and unambiguous description of the problematic behavior(s);
- A description of situations most commonly, and least commonly associated with the occurrence of problematic behavior; and
- Identification of the consequences that maintain behavior. In other words, once a behavior starts, what keeps it going over time? What is reinforcing the behavior so that it continues?
Conducting a functional behavioral assessment is a hollow exercise unless it provides information that: increases understanding of the individual, the problem behavior itself, and the physical and social setting(s) in which the behavior occurs; and can be used to guide the development of supports that are logically connected to this information. Once general understanding of problem behaviors is achieved, it is useful to adopt a positive behavioral support framework to systematically delineate interventions.
Positive behavioral supports are often difficult to define given the diversity of strategies and supports that encompass this term. However, it is important to remember a few hallmarks of positive behavioral supports, including: a focus on preventing the occurrence of problem behavior; a focus on teaching socially acceptable alternatives to problem behavior, especially alternatives that serve the same purpose as the problem behavior, and therefore are more likely to be adopted by the individual; and a focus on expanding beyond consequence strategies, and in particular those generally used as programs (e.g., time out, response costs) across a student's entire school day without regard for how they might match or mismatch with behavioral functions or individual student need.
Bambara and Knoster (1995) proposed a comprehensive format for outlining "multi-component" supports which addresses the following issues: antecedent/setting event strategies;alternative skills training; consequence strategies; and long term prevention. Each of these areas will be addressed in turn:
Antecedent/setting event strategies: The primary goals of this type of strategy are to prevent or reduce the likelihood of problem behavior and to set the stage for learning more adaptive skills over time. For example, many students with Asperger's Syndrome have difficulty with noisy, crowded environments. Therefore, the newly arrived high school freshman who becomes physically aggressive in the hallway during passing periods may need an accommodation of leaving class a minute or two early to avoid the congestion which provokes this behavior. Over time, the student may learn to negotiate the hallways simply by being more accustomed to the situation, or by being given specific instruction or support.
Key issues to address when discussing this type of strategy are:
- What can be done to eliminate the problem (i.e., the antecedent condition)?
- What can be done to modify the situation if it cannot be eliminated entirely?
- Will the antecedent strategy need to be permanent, or is it a temporary "fix" which allows the student (with support) to increase skills needed to manage the situation in the future?
The importance of using antecedent strategies should not be underestimated among the constellation of support strategies. Student's with Asperger's Syndrome often have to manage a great amount of personal stress. Striking a balance of short and long term accommodations through manipulating antecedents to problem behavior is often critical in setting the stage for later skill development.
Alternative Skills Training: The primary purpose of this type of strategy is to teach skills that replace problem behavior by serving the same purpose as the challenging behavior. For example, a young child with Asperger's Syndrome may have trouble "entering" into a kickball game by asking to play and instead simply inserts himself into the game, thereby offending the other players and risking exclusion. Instead, the child can be coached on how and when to ask to enter into the game.
Again, Knoster and Bambara (1995) provide a particularly useful framework for guiding efforts towards teaching alternative skills by examining the following three categories: equivalence training, general skills training, and self-regulation training.
Equivalence training requires support persons to ask the following sequential questions:
- What is the function of the problem behavior?
- What alternative skill(s) will be taught which serves the same function as the problem behavior?
- How will the alternative skills be taught?
General skills training requires asking the following sequential questions:
- What skill deficits are contributing to the problem behavior?
- What other academic, social, or communication skills will be taught that will prevent the problem behavior from occurring?
- How will these alternative skills be taught?
Self-regulation training requires asking the following sequential questions:
- What event's appear to be contributing to the student's anger or frustration in reference to the problem behavior?
- What self-control skills will be taught to help the student deal with difficult/frustrating situations?
- How will these skills be taught?
One particularly relevant means to teach alternative skills is through the use of self-management strategies. Self-management is a procedure in which people are taught to discriminate their own target behavior and record the occurrence or absence of that target behavior (Koegel, Koegel & Parks, 1995). Self-management is a particularly useful technique to assist individuals to achieve greater levels of independent or even inter-dependent functioning across many settings and situations. By learning self-management techniques, individuals can become more self-directed and less dependent on continuous supervision and control. Instead of teaching situation specific behaviors, self-management teaches a more general skill that can be applied in an unlimited number of settings. The procedure has particular relevance and immediate utility for students with Asperger's Syndrome.
The basic steps for teaching self-management, as outlined by Koegel, Koegel and Parks (1995) are: clearly define the target behavior; identify student reinforcers; design or choose a self-management method or recording device; teach the individual to use the self-management device; and teach self-management independence. Readers are encourage to access this article for further instructions in this process.
It is also important for teachers to monitor their own behavior vigilantly when working with student's with Asperger's Syndrome. Each time a teacher reprimands a student for mis-behavior, an opportunity to reframe the moment in terms of the student's need to develop alternative skills through a means such as self-management training may be lost.
Consequence strategies: Though consequences have traditionally been framed in terms of how they reduce problem behavior as punishment for behavior, reframing consequences in terms of reinforcement for achieving alternative behaviors should be the focus for student's with Asperger's Syndrome. One way to reframe the use of consequences is to develop them as planned responses to instructional situations. This shifting of the type and use of consequences does not mean that negative consequences can or should be eliminated, especially in moments of crisis, but that a predominance of negative consequences is likely to heighten anxiety levels for the student and compete with teaching alternative skills.
Long term prevention: In the presence of immediate behavioral concerns, it may be difficult to adopt a long term approach to a student's educational program. However, it is imperative that plans for supporting a student over the long term be outlined right from the start. Many procedures and supports with the most relevance and utility for student's with Asperger's Syndrome (specific accommodations, peer supports, social skills, and self-management strategies) must be viewed as procedures that are developed progressively as the child moves through school. These are not crisis management strategies but the very things that can decrease crisis situations from arising.
Once these questions are addressed, behavior support plans can be established. At the heart of these behavior support plans should be a discussion about how students with Asperger's fit into typical classroom management practices and school-wide discipline procedures. One issue to consider is how a student responds to practices such as response costs, penalties, or fines which are often built into such frameworks. Many students with Asperger's Syndrome become highly anxious in the presence of such penalties, and often cannot regroup following their application. This is especially true if threats over losing highly preferred items or activities are used. Another issue relates to school-wide discipline procedures. Schools which focus on suspension and expulsion as the primary approach rather than on teaching social skills, conflict resolution and negotiation, and on building community learning will typically be less effective with all students, including those with Asperger's. When school-wide discipline procedures and classroom management practices are adopted which are ineffective with the broader school population, students with Asperger's will use their behavior to highlight the weaknesses in these systems. As a result, school staff are forced to adopt intrusive practices which would be unnecessary in more effective systems. Once broader systems are addressed, family members and professionals will often need training about principles of behavior support, and about the characteristics of individuals with Asperger's Syndrome. There are many false assumptions about this population. For example, assumptions about what an individual with Asperger's Syndrome understands, especially related to social conventions, often sparks confrontation with the student but also among staff when discussing appropriate interventions.
Finally, those involved with the student will need to collaborate on a behavior support plan which is clear and easily implemented. Once developed, the plan will need to be monitored across settings. Inconsistencies in our expectations and behaviors, will only serve to heighten the challenges demonstrated by an individual with Asperger's.
Bambara, L.M. & Knoster, T.P. (1995). Guidelines: Effective behavioral support. Harrisburg, PA: Pennsylvania Department of Education, Bureau of Special Education.
Koegel, R.L., Koegel, L.K., & Parks, D.R. (1995). "Teach the individual" model of generalization: Autonomy through self-management. In R.L. Koegel & L.K. Koegel (Eds.), Teaching children with autism: Strategies for initiating positive interactions and improving learning opportunities (pp. 67-77). Baltimore, MD: Paul H. Brookes Publishing Company.
Williams, K. (1995). Understanding the student with Asperger Syndrome: Guidelines for teachers. Focus on Autistic Behavior, 10, 9-16.
Steven M. Jankower, Attorney and Counselor at Law Newsletter
Disaster Planning Includes Keeping Important Documents Safe
The effects of Hurricane Katrina and Hurricane Rita have been widespread and catastrophic and have had a significant impact upon our region, even for those of us who were fortunate not to be directly impacted by the fury of these storms. The storms certainly heightened the importance of emergency preparedness and the need to take steps to make sure that not only our families, but our homes and precious possessions remain as safe and secure as possible.
The importance of keeping precious possessions safe includes not only valuable personal possessions, but also important documents. In particular, these storms have heightened awareness of the need to keep valuable documents such as original wills and durable powers of attorney in safe and secure locations so that they can be used effectively when the time comes that you need them.
It‘s Important to Keep Original Wills in a Secure Location
The most common type of will employed in Louisiana today is one known as a "notarial will". A notarial will must be executed in compliance with requirements of Louisiana law, and must contain certain specific characteristics in order to be accepted by a court. The original copy of a notarial will is particularly valuable because it is a "self-proving" document, i.e., it is not necessary to produce any evidence in the form of affidavits or testimony from individuals who witnessed the signature of the person signing the will in order for the will to be accepted by the court. If the will is executed in full compliance with the requirements of Louisiana law, the original document will be accepted by the court upon presentation.
The rules making notarial wills self-proving as described above only apply where the original will is available to be presented to the judge. Unfortunately, in some instances, family members are not able to find or obtain the original will that a deceased family member may have executed prior to death in order to be able to present it to the court. The original will may be lost, misplaced, or may have been destroyed because it was not placed in a safe and secure location. Under Louisiana law, under limited circumstances, a copy of the will may actually be admitted to probate by a court in circumstances such as this, though it is more difficult and expensive to do so.
Similarly, it is very important to keep an original power of attorney in a safe place until it is needed. Some banks, brokerage houses, and other financial institutions will not accept a power of attorney that is not an original document or a certified true copy of an original document. An original power of attorney, like an original will, should be kept in a safe and secure location until it is needed.
It’s Not Necessary to Record Your Will in Advance
Is it necessary to record original documents such as wills and durable powers of attorney? In the past, it was a common practice for individuals to record their wills in the clerk of court's office prior to the time that they died. However, once a will is recorded, it becomes "public record", meaning that it is deemed available to be examined by any member of the public who chooses to do so. Furthermore, most individuals update their wills at least several times during their lifetime, and a prior will that has been recorded may not even be deemed valid if it has been revoked by a will that has been subsequently executed. Thus, it is not necessary to record an original will with the clerk of court in order for the will to be valid.
Under certain circumstances, a power of attorney may need to be recorded. For example, if it is going to be used by an agent to acquire or sell real estate on behalf of a person who executed the power of attorney, it must be recorded in the parish where such property is located. There may be other circumstances in which it is advisable to record the power of attorney. Once again, where these circumstances do not exist, it is not absolutely necessary for the document to be recorded in order to be enforceable.
Where Should I Keep My Original Will and Power of Attorney?
What should you do with important and valuable documents such as original wills and original powers of attorney? Certainly, these documents should be placed in as safe and secure a location as may be available. A fireproof cabinet or safe at home may work in many instances, but such safes or cabinets may not be totally secure from fires that burn for a long period of time. More importantly, as we learned from Hurricane Katrina and Hurricane Rita, such cabinets or safes may not be secure from flood waters and high winds which can damage or destroy them.
Probably the safest place to keep important and valuable documents such as an original will and durable power of attorney is in a safety-deposit box at a convenient and reputable bank. These boxes have limited accessibility and are kept in vaults at the bank that provide security to the documents. Of course, placement of documents in safety-deposit boxes may limit the availability of such documents in the event of catastrophic storms such as those experienced in recent months, since many banks were closed for extended periods of time following the storms. However, safety-deposit boxes are probably the best option readily available to individuals for storage of important and valuable documents.
Don’t Place Your Family at Risk by Not Safeguarding Your Will and Power of Attorney
Wills and powers of attorney are among the most important documents that an individual will execute during his or her lifetime. If these valuable original documents cannot be located or kept safe for that moment when they are most needed, they will not be available and cannot be used. Don’t place yourself or your family at risk by not taking reasonable steps to safeguard and protect these valuable documents. One option is to check with your attorney to see whether these documents can be stored in the law firm's safety deposit box. Our office provides this as a free lifetime service to our clients when we prepare these documents. For more information and options for safekeeping of your will and power of attorney, please contact us.
IN THE NEXT ISSUE
"Draft a Letter of Intent to Guide Caregivers & Guardians"
http://www.jankower.com/page/page/1083959.htm
Identity Theft
Revolutionary Common Sense
by Kathie Snow
Identity theft hasn’t happened to me yet—knock on wood. I hope it hasn’t happened to you. According to the Better Business Bureau website, identity fraud volume for 2004 was $52.6 billion, involving 9.3 million victims. A variety of companies now offer tips and products to help us protect ourselves from thieves who would steal our names, personal information, and more.
But there’s another form of identity theft that’s been occurring since time began; it’s affected millions of men, women, and children; and the loss to individuals and our society seems to be immeasurable. It can happen in an instant and last a lifetime, but there are no companies or government agencies to help "victims" regain their identities. In far too many cases, the individual and her family don’t even realize the theft has occurred. And sadly, family members and others close to the person may be unwitting co-conspirators of the crime.
This form of identity theft occurs when a disability label robs an individual of the right to define himself. His identity, along with opportunities, experiences, potential, and hopes and dreams, are stolen. This theft might occur when a physician makes the diagnosis, or it can take place at home, in a school, a human services agency, a therapy clinic, or any other location at the moment those in power decide the diagnosis is the most important characteristic of the individual.
When my now 19-year-old son was very young, I was a guilty perpetrator of this crime. At the time he was diagnosed with cerebral palsy at four months of age, our family joined in a conspiracy with physicians, therapists, and early intervention personnel. We allowed "cerebral palsy" to take over the life of Benjamin. Fortunately, some adults with developmental disabilities and a few others who knew the potential dangers of conventional wisdom came to my aid and helped me learn new ways of thinking, which enabled our family to see the real Benjamin. Our son’s identity was restored. He emerged from the black hole relatively unscathed. My husband and I are on parole and in rehab—monitoring our attitudes and actions daily. But it’s a vigilant parole (and our son helps us), for there are still people and systems that would once again steal Benjamin’s identity and turn him into a client, a consumer, a recipient, a "CP," a "special needs" person, or something similar.
We may not be aware that our attitudes, words, and actions can rob a person of his identity. It’s easy to commit this crime—and it’s done unintentionally all the time. In many cases, it occurs even when people have the best of intentions!
Many physicians, parents, therapists, and early childhood specialists have the best of intentions, and this puts them in a high-risk category. I know; been there, done that. It’s far too easy to embrace the-earlier-the-better mentality and attempt to do everything possible to remediate the disability in a baby or very young child. In the process, intensive services, therapies, treatments, and special programs take over a child’s life and he’s robbed of his childhood. (The family’s life is stolen, too!)
School-aged children may have their identities stolen by the special education system. Many are no longer "Ryan" or "Sarah"—they become the "sped student," the "Down’s kid," or even the benign-sounding, but ultimately demeaning "inclusion student." Placement in a segregated special ed classroom, being pulled out of class for "special help," and/or being identified by some "educational status" can rob a child of opportunities to be a fourth-grader, a choir member, or other typical roles assumed by the majority of children in public schools. Throughout their school careers, most students proudly enjoy being Sarah, a second-grader; then later, Sarah, a sixth-grader; and still later, Sarah, a senior. Students with disabilities who spend years in ungraded classrooms are denied this rite of identity passage.
Many adults—whose identities were stolen as children-—may continue to exist in this black hole. To the identity thieves within the human services system, disability descriptors are more relevant than an individual’s name, and perceived deficits are more important than abilities. As a result, far too many adults are denied opportunities to assume the identities of employee, wife or husband, volunteer, taxpayer, and other ordinary roles.
There are many ways to end this form of identity theft. First, recognize that disability descriptors are just words that denote the medical condition a person has, and they cannot be used to judge a person, his value, his potential, or anything else that’s important!
In our society, some words seem to immediately confer respect or elevated status. Physician, teacher, professional initials behind the name, and others come to mind. But as I read in an Ann Landers column many years ago, "Fifty percent of all doctors graduated in the lower half of their class." (And the same is true for other college-educated professionals.) So the second step is to rethink all the different words and labels we use for people, and question the assumptions that go with those descriptors.
The third step depends on your role in the lives of people who happen to have disabilities. When issuing the diagnosis, doctors can reduce the rhetoric about the prognosis, acknowledging that they’re not fortune tellers and cannot predict the future of a person based on a medical diagnosis! Most pediatric specialists (who do much of the diagnosing) have little or no experience with successful adults with developmental disabilities, so how do they know what’s really possible?
Staff in the public school system and human service agencies, along with therapists and service providers of all kinds, may need to use a person’s diagnosis as eligibility criteria for services, but they can leave the diagnosis at the door of the IFSP/IEP/IPP meeting, and spend more time focused on the individual and his abilities, and on what assistive technology, supports, and accommodations he needs to make his hopes and dreams come true.
Imagine what it might feel like if your parents, teachers, and others (including some who hardly know you) spent years trying to change you into their definition of "normal"-—under that seemingly altruistic mantra: "For your own good." This is identity theft! Now imagine what it feels like to never be able to meet that artificial standard: to feel that you’re a failure, that who you are isn’t good enough and what you can do isn’t good enough—and never will be in the eyes of those who are supposed to care for you. Who you are is not acceptable to others, so they attempt to remake you, stealing your unique identity in the process. Many struggle against this theft of spirit, individuality, and potential. In response, we may add "non-compliant" and "inappropriate" to their identities.
If you’re guilty of this form of identity theft, rehabilitate your attitudes, words, and actions. Put yourself on vigilant parole, and ask others to help keep you on the straight and narrow. Make amends to those you’ve hurt. Would you hope for anything less if your identity had been stolen?
**QUOTES:
The power of labels to stigmatize, create self-fulfilling prophecies and reduce or enhance self-images is awesome. J. Dan Rothwell
A judgment ...is a conclusion...Premature judgment often prevents us from seeing what is directly in front of us. S.I. Hayakawa
©2006 Kathie Snow. Permission is granted for non-commercial use of this article: you may photocopy to share with others as a handout. Please tell me how/when you use it: kathie@disabilityisnatural.com. Do not violate copyright laws: request permission before reprinting in newsletters, web sites, list serves, etc. To learn more new ways of thinking, to sign up for the free Disability is Natural E-Newsletter, to see products that promote positive images, or to learn about Kathie’s Disability is Natural book and video, visit: www.disabilityisnatural.com.
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